Hey all,
Looks like we will come home on Saturday. We are both tremendously excited and completely nervous. Just as our nurse says, we are more anxious about bringing her home now than after her birth. This is primarily because Leslie has a depressed immune system.
Leslie's neutrophil count on Friday morning was 470, as opposed to around 200 on the 13th so the numbers are increasing, but this is before the chemotheraphy that was done later in the afternoon; we assume that her numbers will drop after the chemo. An average person has a neutrophil count of 2,500 - 6,000 or so. Essentially what this means is that she has no immune system. Any temp over 101 will send her back to the hospital for a minimum 3 day stay for iv antibiotics.
Additionally, we must worry about her red blood cells and platelet levels, but these can be transfused as necessary, so our primary concern will be infections, infections, infections.
I'm sorry about the slow updates, with the holidays and the bouncing around between house and hospital, we are tired. One final note.
Sadness strikes me at odd times during the day. Today I was laying my niece down for a nap and the beauty of a babe slowly falling asleep reminded me of the times that I had rocked Leslie to sleep; yet I regret that many of those times I was impatient for her to fall asleep because I had to do X, Y or Z. How I wish that I could rock her for two years straight and have this ordeal behind us. That said, best case scenario we are 1% of the way home.
Happy Holidays,
Joe and Lori
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